TorCHI
In serious illness contexts, caregivers tasked with making decisions for incapacitated patients face unique challenges. Current tools for values elicitation, primarily patient-oriented, may not fully meet caregiver needs. This study, involving 12 caregivers, adopted a research-through-design approach to evaluate caregiver-facing values elicitation tools. The findings reveal caregivers’ need for more support in understanding their own values, discerning patient values, and reconciling these perspectives. While caregivers seek tools for consensus building within the family, they prefer using them individually rather than in a shared manner. The study also highlights a general unawareness of the importance of values in decision-making. This lack of understanding points to the need for tools that educate as well as aid in decision-making. Finally, tool designers must balance top-down directives with bottom-up values in their designs. This research informs the development of more effective caregiver-facing values elicitation tools.
Bio: Dr. Foong is the Head of Design at the Telehealth Core, a research centre that supports and studies the design and development of patient-centred eHealth projects. She has a Masters in Human Computer Interaction Design and a PhD in Interactive Media. As an avid design practitioner, she brings more than a decade of international experience to her teaching and academic research. She is part of the team that has attracted millions in funding for digital health solutions in chronic disease prevention, and more recently patient and caregiver support in planning for the end-of-life.
@TorCHI